Introduction

I'm a mom to special kids (or kidz - as I've spelled my blog).  I'm sure all people think their kids are special and there are even mom's to special needs kids beyond me, but this is just my story.

I'm actually writing a book about my three girls that have special needs.  My eldest has Pulmonary Atresia/Tetrology of Fallot (heart), cystic kidneys (kidney), and congential scoliosis (spine).  My second daughter had Trisomy 18 (Edward's Syndrome) and died due to the complications of it.  My youngest has a brain condition (not named as no one has exactly her condition) and had congential estrophia (lazy eyes).

I also have a son, but we thought he was alright, until he started talking.  So I've had him evaluated and he's still behind, not only with his speech but some other skills.  So, I now have four kids (three living) that are "special needs".

So I decided to blog a bit about what's going on with them, beyond my book.

Here's their picture together just last May:

It's an annual tradition we go out to my daughter's grave and take a picture with all the kids.  I've enjoyed seeing them all together every year and seeing how they all grow.  I will say sometimes as they've gotten older it's hard to get a picture where they're all looking at the camera and smiling.  This was one in about 8 shots :D

No matter what their conditions and what we've gone through and still going through - they are the light in my life.  Watching them battle and often times win their battles makes me very proud to be the one guiding them along.

I make sure they do as much as they can to the best of their ability.  I do not let them get away with "I can't".  Especially without trying.  If they try and they find they can't, then fine, they at least tried and we will try again a little later.  There may be things they never get done and that's OK.  Not everyone can do everything.

I'm hoping to give perspective to others that are in similar positions and make them realize they're not alone.  It's also a good thing for me to write about my experiences because it's a way to look back and see how far they've come as well as give me an outlet to be frustrated (if need be).  Because it's better to get that frustration out and not let it fester.

So thank you for "listening" to me and hopefully you'll like to be on this journey with me...